The Alexion Charitable Foundation Inc
Boston, MA · EIN 831065602 990-PF tax year 2025
Historical funder research: IRS Form 990-PF filings from US private foundations, showing who funded what in past years. This is not a list of currently open grant calls, and we do not track open RFPs from private foundations. From public IRS Form 990-PF filings (latest on file for this funder: tax year 2025). Coverage: tax years 2019–2025. Freshness: the IRS releases these returns 1.5–2+ years after the tax year ends, so 2025 is still partial and a funder's newest grants may not appear yet. Last updated: November 14, 2026. Filings can contain errors, so confirm current priorities and deadlines with the funder before applying.
Grants paid (tax yr 2025)
$1,090,670
Assets (fair market value)
$6,689,766
Median grant to orgs
$25,000
all loaded years
Grants in our data
64
since tax year 2022
Giving by tax year
$643,998
2022
18 grants
$2,022,219
2023
26 grants
$810,000
2024
8 grants
$1,090,670
2025
12 grants
Year 2025 is still partial because many returns have not been filed or released yet. That is a freshness issue — coverage in our dataset is tax years 2019–2025.
Top recipient states
MA$1,182,300
Outside the U.S.$808,537
MD$772,629
CT$566,000
IL$533,421
NY$283,000
CA$256,000
DC$100,000
Cause areas funded
Health Care3
Diseases & Disorders2
Medical Research1
Youth Development3
Public & Societal Benefit1
Civil Rights & Advocacy1
International Affairs1
Education2
Only 29.7% of this funder's organizational grants could be linked to an IRS cause code.
How to apply (from the 990-PF, tax year 2025)
- Form & materials
- THERE IS A FORMAL APPLICATION PROCESS THROUGH THE ALEXION CHARITABLE FOUNDATION, INC.'S WEBSITE.
- Deadlines
- NONE
- Restrictions
- THE ALEXION CHARITABLE FOUNDATION, INC. MAKES CONTRIBUTIONS TO BOTH PRE-SELECTED AND UNSOLICITED CHARITABLE ORGANIZATION REQUESTS.
Recent grants to organizations
| Recipient | Location | Purpose (as filed) | Amount | Tax yr |
|---|---|---|---|---|
| Roald Dahl's Marvelous Children's Charity | Amersham Buckinghamshire, United Kingdom | THE GRANT WILL SUPPORT THE PROJECT TITLED BRIDGING BARRIERS TO CARE: EXPANDING SPECIALIST SUPPORT FOR CHILDREN WITH RARE AND COMPLEX MEDICAL CONDITIONS IN THE UK FOR THE FOLLOWING PURPOSE ENHANCE THE DIAGNOSTIC JOURNEY AND ACCESS TO SPECIALISED CARE FOR CHILDREN LIVING WITH RARE AND COMPLEX MEDICAL CONDITIONS. THE SUPPORT WILL ENABLE THE DEPLOYMENT OF A NEW COHORT OF ROALD DAHL NURSE SPECIALISTS WHO FOCUS ON CHILDREN WITH MEDICAL COMPLEXITIES (CMC) OVER A 12-MONTH PERIOD, ENSURING THAT CHILDREN WITH CMC AND THOSE LIVING WITH RARE DISEASES RECEIVE EXPERT, COORDINATED CARE TAILORED TO THEIR UNIQUE NEEDS. THE PROGRAM WILL OFFER PROFESSIONAL DEVELOPMENT OPPORTUNITIES FOR EXISTING ROALD DAHL NURSES, EQUIPPING THEM WITH ADVANCED SKILLS TO MANAGE THE COMPLEXITIES OF RARE DISEASES AND ALSO SUPPORT THE DELIVERY OF EDUCATIONAL AND SKILL-BUILDING WORKSHOPS, ALONGSIDE THE DISTRIBUTION OF ESSENTIAL RESOURCES TO FAMILIES. | $150,000 | 2025 |
| Angel Flight of New England Inc | North Andover, MA | THE GRANT WILL SUPPORT THE PROJECT TITLED MISSION/FLIGHT COORDINATION: HEALING JOURNEYS FOR PATIENTS BATTLING RARE DISEASES TO COORDINATE FREE AIR AND GROUND TRANSPORTATION SO PATIENTS CAN ACCESS SPECIALIZED MEDICAL CARE AND TREATMENT OUTSIDE OF THEIR GEOGRAPHIC AREA TO TREAT AND BATTLE ILLNESSES AND OTHER HEALTH AFFLICTIONS INCLUDING RARE AND ULTRA-RARE DISEASES THAT COULD BE LIFE THREATENING IF THE PATIENT DOES NOT RECEIVE THE SPECIALIZED CARE THAT THEY NEED. WITH THE CONSOLIDATION OF HEALTHCARE ENTITIES, WE ARE HAVING MORE AND MORE PATIENTS TURN TO US FOR HELP TO ACCESS SPECIALIZED CARE AND TREATMENT THAT IS NOT AVAILABLE TO THEM IN THEIR GEOGRAPHIC AREA. WE PROVIDE OUR SERVICES FOR AS LONG AND AS OFTEN AS A PATIENT NEEDS OUR HELP. SINCE 1996, WE HAVE SCHEDULED OVER 108,000 PATIENT/PASSENGER MISSIONS WHO HAVE TRAVELED MORE THAN 16 MILLION TO MORE THAN 750 MEDICAL FACILITIES. DISTANCE SHOULD NEVER BE AN OBSTACLE FOR PATIENTS TO ACCESS THE MEDICAL CARE THEY NEED AND DESERVE. | $150,000 | 2025 |
| Connecticut Children's Medical Center Foundation Inc | Hartford, CT | THE GRANT WILL SUPPORT THE PROJECT TITLED IMPROVING TIMELY ACCESS TO CARE FOR INFANTS WITH OUT-OF-RANGE GENETIC NEWBORN SCREENING (NBS) AIMS TO IMPLEMENT AND EVALUATE A COMPREHENSIVE EDUCATIONAL AND SOCIAL SUPPORT INTERVENTION FOR FAMILIES WHO RECEIVE NOTIFICATIONS OF OUT-OF-RANGE GENETIC NEWBORN SCREENING (NBS) RESULTS. THE NETWORK'S NBS REGISTERED NURSES (NBS RNS) WILL EDUCATE AND SUPPORT FAMILIES, CONDUCT AN ELECTRONIC SOCIAL DETERMINANTS HEALTH (SDOH) ASSESSMENT, PROVIDE FAMILIES WITH THE OPTION TO BE CONNECTED TO A PERSONALIZED ELECTRONIC HEALTH PORTAL (MYCHART), AND HAVE A TELEHEALTH VISIT WITH AN NBS GENETIC COUNSELOR IF INDICATED. THIS INITIATIVE AIMS TO ENHANCE TIMELY ACCESS TO CARE BY ADDRESSING BARRIERS FACED BY THIS VULNERABLE POPULATION. | $140,000 | 2025 |
| Willow Foundation | Welwyn Garden City, United Kingdom | THE GRANT WILL SUPPORT THE PROJECT TITLED SPECIAL DAY SERVICES FOR YOUNG ADULTS LIVING WITH RARE DISEASES AND RARE CANCERS ACROSS THE UK IN 2025 FOR THE FOLLOWING PURPOSE: THE PROJECT IS DEDICATED TO GIVE YOUNG ADULTS LIVING WITH RARE DISEASES AND RARE CANCERS, AND THEIR CAREGIVERS/FAMILY MUCH-NEEDED TIME OUT FROM THE REALITY OF LIVING WITH A RARE DISEASE. WE DO THIS BY PROVIDING ENJOYABLE AND INCLUSIVE MEMORY-MAKING EXPERIENCES WHICH GIVE HOPE, PROMOTE RESILIENCE AND ENHANCE COPING STRATEGIES. OUR DISEASE AGNOSTIC APPROACH MEANS WE AIM TO REACH YOUNG ADULTS WITH AS WIDE A RANGE OF DISEASES AS POSSIBLE BY PROMOTING OUR SERVICES ACROSS MEDICAL SETTINGS AND PATIENT ADVOCACY GROUPS ACROSS THE UK. | $125,000 | 2025 |
| Make-A Wish Canada | Toronto, Canada | THE GRANT WILL SUPPORT THE PROJECT TITLED THE FIRST GIFT OF ITS KIND | MAKE-A-WISH CANADAS RARE AND GENETIC DISEASE FUND FOR THE FOLLOWING PURPOSE: TO GRANT BETWEEN 250 TO 300 WISHES TO CHILDREN WITH RARE AND GENETIC DISEASES THIS YEAR, A SHOCKING 70% INCREASE FROM LAST YEAR. | $100,000 | 2025 |
| Caregiver Action Network | Washington, DC | THE GRANT WILL SUPPORT THE PROJECT TITLED IDENTIFYING, REACHING AND SUPPORTING CAREGIVERS OF RARE DISEASE PATIENTS IN DIVERSE AND UNDERSERVED PATIENT POPULATIONS FOR THE FOLLOWING PURPOSE LEADING A DIRECT-TO-CAREGIVER INITIATIVE AIMED AT EXPANDING ACCESS TO GENETIC TESTING AND REDUCING THE TIME TO DIAGNOSIS FOR PATIENTS WITH RARE CONDITIONS. CAN'S APPROACH EMPHASIZES THE CRUCIAL ROLE OF CAREGIVERS IN THE DIAGNOSTIC PROCESS AND TARGETS ZIP CODES WITH KNOWN HEALTHCARE DISPARITIES TO REACH DIVERSE AND UNDERSERVED POPULATIONS. THEY PARTNER WITH 600+ PATIENT ADVOCACY GROUPS (PAGS) TO EMPOWER PATIENTS AND CAREGIVERS. BY ENABLING THEM TO EASILY SHARE THEIR DIAGNOSTIC JOURNEYS THROUGH AN ONLINE CHATBOT, CAN AIMS TO SIMPLIFY THE NAVIGATION OF THE TESTING PROCESS. | $100,000 | 2025 |
| Abc Life Literacy Canada | Toronto, Canada | THE GRANT WILL SUPPORT THE PROJECT TITLED ABC HEALTH MATTERS: MANAGING RARE DISEASES AND CHRONIC HEALTH ISSUES WHICH IS AN INTRODUCTORY HEALTH LITERACY PROGRAM THAT EMPOWERS CANADIANS TO MANAGE THEIR HEALTH MORE EFFECTIVELY BY INCREASING THEIR CONFIDENCE WHEN TALKING ABOUT AND MAKING DECISIONS REGARDING HEALTH ISSUES WITH FAMILY, FRIENDS AND HEALTH PROFESSIONALS. RENEWED SUPPORT FROM THE ALEXION CHARITABLE FOUNDATION WOULD ALLOW US TO ADD ADDITIONAL RESOURCES TO THE NEW STREAM OF THE ABC HEALTH MATTERS PROGRAM WHICH WAS DESIGNED TO MEET THE NEEDS OF FAMILIES IMPACTED BY RARE DISEASES AND CHRONIC HEALTH ISSUES. THE PROGRAM WILL INCLUDE ONE NEW TARGETED WORKBOOK, WORKSHOPS, OUTREACH TO COMMUNITY ORGANIZATIONS AND HEALTH CARE PROFESSIONALS, A DEDICATED PROGRAM LANDING PAGE, AND COMMUNICATIONS AND PROMOTIONAL ACTIVITIES TO RAISE AWARENESS ABOUT PROGRAM OFFERINGS, WITH SPECIAL ATTENTION DURING OCTOBER'S HEALTH LITERACY MONTH. | $90,000 | 2025 |
| Seriousfun Children's Network | Norwalk, CT | THE GRANT WILL SUPPORT THE PROJECT TITLED MENTAL HEALTH & MENTAL WELLNESS PROGRAMMING AT SERIOUSFUN CAMPS TO ADDRESS AND SUPPORT THE MENTAL HEALTH NEEDS ACROSS OUR GLOBAL NETWORK OF CAMPS, SPECIFICALLY OUR RARE DISEASE CAMPER COMMUNITY. GRANT FUNDING WILL CONTINUE TO FOCUS ON MENTAL HEALTH INTERVENTIONS FOR CAMPER AND FAMILY PROGRAMMING, MENTAL HEALTH PROFESSIONAL POSITIONS AT CAMP, AND MENTAL HEALTH TRAININGS AND CERTIFICATIONS FOR CAMP STAFF. | $75,000 | 2025 |
| Courageous Parents Network | Newton, MA | THE GRANT WILL SUPPORT THE PROJECT TITLED ANTICIPATORY GUIDANCE IN MULTIPLE LANGUAGES FOR FAMILIES OF CHILDREN WITH SEVERE NEUROLOGICAL IMPAIRMENT VIA CPN'S DIGITAL TOOL. NEUROJOURNEY IS AN EDUCATIONAL RESOURCE FOR FAMILIES AND CLINICIANS NAVIGATING THE EVER-EVOLVING NEEDS OF A CHILD WITH SEVERE NEUROLOGICAL IMPAIRMENT (SNI). IT EXPLORES THE INTERCONNECTED MEDICAL COMPLICATIONS COMMON IN PEDIATRIC NEURO-DEGENERATIVE RARE DISEASES. DESIGNED AS AN ANTICIPATORY GUIDANCE TOOL FOR PARENTS, THE CONTENT IS ORGANIZED IN PHASES AS THEY MIGHT OCCUR IN THE ILLNESS JOURNEY. THE RESOURCE ALSO INCLUDES PERSPECTIVES ON THE SOCIAL AND EMOTIONAL EXPERIENCES OF FAMILIES AS THEY CARE FOR THEIR CHILD, ALL ROOTED IN THE PRINCIPLES OF PALLIATIVE CARE. NEUROJOURNEY IS AVAILABLE IN BOTH WRITTEN AND AUDIO FORMATS IN ENGLISH, SPANISH AND FRENCH. WITH THIS FUNDING, NEUROJOURNEY IS ALSO AVAILABLE FOR AFFECTED FAMILIES SPEAKING PORTUGUESE, ARABIC OR CHINESE SOON. | $57,300 | 2025 |
| Genetic Alliance | Damascus, MD | THE GRANT WILL SUPPORT THE PROJECT TITLED IHOPE FOR WHICH AIMS TO REVOLUTIONIZE BRIDGING THE GENETIC MEDICINE GAP AND PROVIDE NEXT-GENERATION CARE TO THOSE WHO NEED IT MOST. USING ADVANCED GENOMIC SEQUENCING TECHNOLOGY AND WORKING WITH LOCAL HEALTHCARE PROVIDERS, GENETIC ALLIANCE CAN DIAGNOSE GENETIC CONDITIONS EARLY AND ACCURATELY. THE PRIMARY GOAL IS TO PROVIDE PRECISION GENETIC DIAGNOSES TO CHILDREN WITH PREVIOUSLY UNDIAGNOSED CONDITIONS, ENABLING TARGETED TREATMENTS THAT IMPROVE QUALITY OF LIFE, REDUCE SUFFERING, AND INCREASE SURVIVAL RATES. ESTABLISHING A FRAMEWORK FOR GENETIC HEALTH SERVICES IN UNDER-RESOURCED AREAS WILL ENSURE LONG-TERM SUSTAINABILITY WITHIN LOCAL HEALTHCARE SYSTEMS. | $53,370 | 2025 |
| Cure VCP Disease | Warner Robins, GA | THE GRANT WILL SUPPORT THE PROJECT TITLED A NEW HOPE | WELLBEING IN RARE FOR THAT AIMS TO CREATE A MENTAL HEALTH AND EDUCATION PROGRAM TO SUPPORT TEENAGERS AND YOUNG ADULTS WHO ARE POTENTIAL CAREGIVERS AND FUTURE PATIENTS IN THE RARE AUTOSOMAL DOMINANT DISEASE SPACE. PARTICIPANTS WILL HAVE ACCESS TO GENETIC TESTING AND COUNSELING SERVICES, MONTHLY CHECK-INS WITH A SOCIAL WORKER, AND MULTIPLE FORMS OF EDUCATION AND PEER ENGAGEMENT, INCLUDING SOCIAL MEDIA CONTENT, WEBINARS, AND PEER SUPPORT GROUPS. THIS WILL PROVIDE ESSENTIAL SUPPORT AND PREPARE PARTICIPANTS TO MAKE DECISIONS ABOUT THEIR FUTURE CAREER, PERSONAL HEALTH, FAMILY PLANNING, AND CARE NEEDS. | $25,000 | 2025 |
| Raregivers - A Nonprofit Group Enriching Lives | Orange, CA | SUPPORT THE PROJECT TITLED RAREGIVERS GLOBAL MENTAL HEALTH & EMOTIONAL WELLBEING INITIATIVE: GUIDING CAREGIVERS AND PATIENTS THROUGH THE EMOTIONAL JOURNEYS IN RARE, CHRONIC & COMPLEX DISEASE FOR THE PURPOSE OF SUBSIDIZED FEES FOR RAREGIVERS WELLNESS RETREATS, FREE SUPPORT GROUPS AND PUBLIC WEBINARS, ENSURING INCLUSIVITY AND GLOBAL REACH. RAREGIVERS RETREATS, WEBINARS AND SUPPORT GROUPS ARE DESIGNED TO CREATE A SUPPORTIVE COMMUNITY, FOSTERING RESILIENCE AND EMPOWERMENT AMONG RARE DISEASE CAREGIVERS. | $25,000 | 2025 |
| Give An Hour | Clarksburg, MD | THE GRANT WILL SUPPORT THE PROJECT TITLED CARE FOR CAREGIVERS: CARECONNECT: STRENGTHENING PEER & CLINICAL MENTAL HEALTH SUPPORT FOR RARE DISEASE CAREGIVERS PROGRAM WHICH AIMS TO STRENGTHEN THE CONTINUUM OF MENTAL HEALTH SUPPORT FOR CAREGIVERS WITHIN RARE DISEASE COMMUNITIES BY EXPANDING BOTH NONCLINICAL AND CLINICAL RESOURCES. THROUGH PARTNERSHIPS WITH RARE-SERVING ORGANIZATIONS, WE WILL ENHANCE CAREGIVER SUPPORT SYSTEMS WHILE DELIVERING SPECIALIZED TRAINING TO MENTAL HEALTH PROFESSIONALS TO ADDRESS THE COMPLEX EMOTIONAL AND PSYCHOLOGICAL CHALLENGES CAREGIVERS FACE. ADDITIONALLY, CRISIS SUPPORT PROTOCOLS WILL BE ESTABLISHED TO ENSURE SWIFT, EFFECTIVE INTERVENTIONS DURING EMERGENCIES, FOSTERING LONG-TERM RECOVERY AND RESILIENCE. | $200,000 | 2024 |
| Patient Airlift Services (Pals) | Farmingdale, NY | THE GRANT WILL SUPPORT THE PALS MISSION OF HELPING PEOPLE WITH TRANSPORTATION NEEDS FOR PEOPLE AFFECTED BY RARE DISEASES. PALS ARRANGES FREE AIR TRANSPORTATION FOR INDIVIDUALS LIVING WITH OR AFFECTED BY RARE DISEASE TO ACCESS OUT-OF-TOWN MEDICAL DIAGNOSIS, TREATMENT, AND FOLLOW-UP, AS WELL AS TO ATTEND RARE DISEASE CONFERENCES AND SOCIAL/EDUCATION EVENTS THROUGHOUT THE US. THE GRANT WILL FUND THE PROVISION OF ROUGHLY 450+ FLIGHTS NATIONALLY FOR RARE DISEASE PATIENTS, CAREGIVERS, AND FAMILIES (INCLUDING GROUND TRANSPORTATION BETWEEN THE AIRPORT AND TREATMENT DESTINATION), AS WELL AS OUTREACH TO PROMOTE THE AVAILABILITY OF THESE SERVICES TO THE RARE DISEASE COMMUNITY. | $150,000 | 2024 |
| Life Literacy Canada | Toronto, Canada | THE GRANT WILL SUPPORT THE PROJECT TITLED ABC HEALTH MATTERS: MANAGING RARE DISEASES AND CHRONIC HEALTH ISSUES FOR THE FOLLOWING PURPOSE: ABC HEALTH MATTERS IS AN INTRODUCTORY HEALTH LITERACY PROGRAM THAT EMPOWERS CANADIANS TO MANAGE THEIR HEALTH MORE EFFECTIVELY BY INCREASING THEIR CONFIDENCE WHEN TALKING ABOUT AND MAKING DECISIONS REGARDING HEALTH ISSUES WITH FAMILY, FRIENDS, AND HEALTH PROFESSIONALS. ABC SEEKS TO DEVELOP A NEW STREAM OF THE ABC HEALTH MATTERS PROGRAM DESIGNED TO MEET THE NEEDS OF FAMILIES IMPACTED BY RARE DISEASES AND CHRONIC HEALTH ISSUES. THE PROGRAM WILL INCLUDE TWO NEW TARGETED WORKBOOKS, COURSES ON THEIR CUSTOM LEARNING PLATFORM (THE ABC SKILLS HUB), OUTREACH TO COMMUNITY ORGANIZATIONS AND HEALTH CARE PROFESSIONALS, A DEDICATED PROGRAM LANDING PAGE, AND COMMUNICATIONS AND PROMOTIONAL ACTIVITIES TO RAISE AWARENESS ABOUT PROGRAM OFFERINGS. | $150,000 | 2024 |
| Boston Children's Hospital | Boston, MA | THE GRANT WILL SUPPORT THE PROJECT TITLED RAINBOW/KASA PROGRAM WHICH IS BOSTON CHILDREN'S HOSPITAL'S PRIMARY-CARE MEDICAL HOME FOR HIGHLY COMPLEX CHILDREN, OVER 50% OF WHOM HAVE RARE DISEASES. THE DEMAND FOR THE RAINBOW/KASA PROGRAM HAS GROWN SUBSTANTIALLY IN RECENT YEARS DUE TO HIGH QUALITY CARE COORDINATION SERVICES AND ABILITY TO MANAGE A POPULATION THAT OTHER MEDICAL HOMES CANNOT. THIS INITIATIVE - IMPROVING ACCESS TO COMPLEX PRIMARY CARE SERVICES - WILL ALLOW TO ENSURE MAXIMAL ACCESS FOR NEW PATIENTS TO THE PROGRAM, ENSURING THAT NEW PATIENTS CAN BE SEEN QUICKLY AND APPROPRIATELY WITH FULL SOCIAL AND MEDICAL ASSESSMENTS AND CONNECTION TO HOME AND HOSPITAL-BASED MEDICAL SUPPORTS. IN ADDITION, THIS INITIATIVE WILL ALLOW TO INCREASE OUR URGENT CARE SERVICES FOR RAINBOW/KASA PATIENTS, ENSURING THAT MORE PATIENTS CAN BE SEEN EACH DAY BY PROVIDERS EXPERT IN COMPLEX CARE. | $100,000 | 2024 |
| Angel Flight of New England | North Andover, MA | ONGOING GRANT IN SUPPORT OF ANGEL FLIGHT NES MISSION/FLIGHT COORDINATION: HEALING JOURNEYS FOR RARE DISEASES PROGRAM WILL ALLOW THEM TO CONTINUE THEIR SUPPORT OF PATIENT AND OUTREACH ACTIVITIES, ENABLING MORE PATIENTS AND FAMILIES TO RECEIVE SUPPORT IN ACCESSING AERIAL TRANSPORTATION FOR MEDICAL TREATMENTS NOT AVAIALABLE IN THEIR GEOGRAPHICAL AREAS. PARTICIPATING IN EXPANDED MARKETING TO VARIOUS RARE/ULTRA-RARE GROUPS TO PARTNER AND EDUCATE THEM ON ANGEL FLIGHT NES FREE AIR TRANSPORTATION SERVICES IS PIVOTAL TO CONTINUED GROWTH. | $100,000 | 2024 |
| The Children's Inn at Nih | Bethesda, MD | THE CHARITABLE PURPOSE OF THE GRANT IS TO SUPPORT THE CAMPAIGN FOR THE CHILDREN'S INN AT NIH, A CAPITAL CAMPAIGN TO TRANSFORM ITS RESIDENTIAL FACILITY INTO A STATE-OF-THE-ART ENVIRONMENT TO SERVE MORE YOUNG PEOPLE AND THEIR FAMILIES, KEEP PACE WITH THE NIH'S GROWTH AND DISCOVERY, AND MEET THE CHANGING NEEDS OF RESIDENTS AND PEDIATRIC MEDICAL RESEARCH. | $75,000 | 2024 |
| The Akari Foundation | San Antonio, TX | THE GRANT WILL SUPPORT THE PROJECT TITLED RARE DISEASE SUPPORT INITIATIVE FOR THE PURPOSE ENHANCING ACCESS TO CARE FOR HISPANIC FAMILIES AFFECTED BY RARE DISEASES BY ADDRESSING CRITICAL BARRIERS SUCH AS MOBILITY, LANGUAGE, AND FINANCIAL CONSTRAINTS. THE PROGRAM WILL PROVIDE ESSENTIAL RESOURCES, INCLUDING TRAVEL ASSISTANCE, EDUCATIONAL INITIATIVES, AND CULTURALLY COMPETENT SUPPORT SERVICES, ENSURING THAT UNDERSERVED POPULATIONS RECEIVE TIMELY DIAGNOSES AND EQUITABLE ACCESS TO HEALTHCARE. BY LEVERAGING THEIR EXPERTISE IN SERVING THE HISPANIC COMMUNITY, AKARI FOUNDATION AIMS TO EMPOWER FAMILIES AND IMPROVE HEALTH OUTCOMES THROUGH TARGETED OUTREACH AND ADVOCACY EFFORTS. | $25,000 | 2024 |
| Starvistas Early Childhood Programming | San Carlos, CA | THE GRANT WILL SUPPORT THE PROJECT TITLED, EARLY CHILDHOOD PROGRAMMING: EARLY CONNECTIONS FOR NURTURING RESILIENT FAMILIES AND THRIVING CHILDREN WHICH COMMITS TO SUPPORTING FAMILIES WITH YOUNG CHILDREN, HELPING THEM OVERCOME LIFE'S CHALLENGES SUCH AS: MITIGATE THE EFFECTS OF FAMILY RISK FACTORS, TRAUMA, AND TOXIC STRESS. ENHANCE PARENTS AND CAREGIVERS' CAPACITY AND KNOWLEDGE TO CARE FOR THEIR CHILDREN. MENTAL HEALTH SERVICES FOR CHILDREN AND CAREGIVERS. EDUCATIONAL WORKSHOPS, TRAINING AND CONSULTATION FOR CHILDCARE PROVIDERS TO ENSURE THEY HAVE THE NECESSARY KNOWLEDGE AND SUPPORT ADDITIONALLY, PROVIDING SERVICES THROUGH VARIOUS MEANS, INCLUDING IN PERSON AT LOCATIONS ACROSS THE COUNTY, IN CLIENT HOMES, VIA PHONE, AND VIRTUALLY, TO INCREASE ACCESSIBILITY. | $10,000 | 2024 |
| Give An Hour | Clarksburg, MD | THE GRANT WILL SUPPORT THE PROJECT TITLED CARE FOR CAREGIVERS: MENTAL HEALTH & EMOTIONAL WELLBEING CARE FOR RARE CAREGIVERS PROGRAM FOR THE PURPOSE IN CAPTURING THE MOST EFFECTIVE PARTS OF OUR LEARNING FROM THE PY22 GRANT AND CONTINUE TO BROADEN AND DEEPEN OUR SUSTAINABLE ABILITY TO ADDRESS UNMET AND DISCONNECTED MENTAL HEALTH AND EMOTIONAL WELLBEING (MH & EW) NEEDS OF THOSE IN THE RARE DISEASE CAREGIVER COMMUNITY, REGARDLESS OF WHERE THEY ARE IN THE CONTINUUM OF THEIR CAREGIVING JOURNEY. | $444,259 | 2023 |
| Serious Fun Children | Norwalk, CT | THE GRANT WILL SUPPORT THE PROJECT TITLED MENTAL HEALTH SUPPORT GRANT PROGRAM FOR THE FOLLOWING PURPOSE OF PROVIDING LIFE-CHANGING CAMPS AND PROGRAMS SERVING CHILDREN LIVING WITH SERIOUS ILLNESSES AND THEIR FAMILIES AROUND THE WORLD, TOTALLY FREE OF CHARGE. SERIOUSFUN PROGRAMMING AND FACILITIES ARE SKILLFULLY ADAPTED TO FIT THE DIFFERENT CULTURES AND MEDICAL CONDITIONS OF CAMPERS. EVERY ATTEMPT IS MADE TO BE INCLUSIVE AND ACCESSIBLE. THE MEDICAL EXPERTISE AT CAMPS ENABLES THEM TO SUPPORT CHILDREN WITH MORE THAN 100 DIFFERENT TYPES OF CONDITIONS INCLUDING CANCER, BLOOD DISORDERS, HEART DISEASES, IMMUNOLOGICAL DISORDERS, NEUROLOGIC CONDITIONS, GENETIC CONDITIONS, AND METABOLIC DISORDERS. | $250,000 | 2023 |
| Angel Flight of New England | Andover, MA | ONGOING GRANT IN SUPPORT OF ANGEL FLIGHT NE'S MISSION/FLIGHT COORDINATION: HEALING JOURNEYS FOR RARE DISEASES PROGRAM WILL ALLOW THEM TO CONTINUE THEIR SUPPORT OF PATIENT AND OUTREACH ACTIVITIES, ENABLING MORE PATIENTS AND FAMILIES TO RECEIVE SUPPORT IN ACCESSING AERIAL TRANSPORTATION FOR MEDICAL TREATMENTS NOT AVAILABLE IN THEIR GEOGRAPHICAL AREAS. PARTICIPATING IN EXPANDED MARKETING TO VARIOUS RARE/ULTRA-RARE GROUPS TO PARTNER AND EDUCATE THEM ON ANGEL FLIGHT NE'S FREE AIR TRANSPORTATION SERVICES IS PIVOTAL TO CONTINUED GROWTH. | $250,000 | 2023 |
| Global Genes | Aliso Viejo, CA | GRANT WILL SUPPORT THE PROJECT TITLED RARE MENTAL HEALTH IMPACT GRANTS PROGRAM WHICH PROVIDES AN OPPORTUNITY FOR FOUNDATION LEADERS TO APPLY FOR GRANTS TO ASSIST IN CREATING PROGRAMS, EDUCATIONAL TOOLS/MATERIALS, AND SUPPORT NETWORKS TO ADDRESS UNMET MENTAL HEALTH AND SOCIAL SUPPORT NEEDS OF THEIR COMMUNITY. THE GOAL OF THE IMPACT GRANTS PROGRAM IS TO EQUIP PATIENT COMMUNITIES TO EXPAND AVAILABILITY AND EFFECTIVENESS OF TOOLS AND CAPABILITIES THAT ADDRESS CRITICAL MENTAL HEALTH NEEDS. A SECONDARY GOAL IS TO UTILIZE, PROMOTE AND MAKE AVAILABLE THE OUTPUTS FROM THE GRANT-FUNDED PROJECTS TO THE LARGER RARE COMMUNITY. | $165,000 | 2023 |
| Ronald Macdonald House Charities | Chicago, IL | CONTINUE TO SUPPORT THE PROJECT TITLED, RONALD MCDONALD HOUSE CHARITIES GLOBAL HEALTH AND WELLNESS INITIATIVE, WITH THE PURPOSE OF FUNDING INNOVATION AND CAPACITY GRANTS TO FOUR (4) LOCAL RMHC CHAPTERS IN FRANCE, ITALY, AUSTRALIA, AND THE UNITED KINGDOM IN ORDER TO CONTINUE TO SUPPORT THE MENTAL HEALTH NEEDS OF FAMILIES AND CHILDREN, VIA THE RMHC'S GLOBAL HEALTH AND WELLNESS INITIATIVE. THIS INITIATIVE WILL HELP FAMILIES AND CAREGIVERS COPE WITH THEIR CHILDS ILLNESS OR DISEASE AND ADDRESS THE PSYCHOSOCIAL AND PHYSICAL WELL-BEING OF BOTH RMHC FAMILIES, AND THE STAFF CHARGED WITH CARING FOR THEM. | $150,000 | 2023 |
Grants to individuals are counted but not named.
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